Charlotte Hawkins wants the government to invest £50 million in motor neuron disease research.
Since her father Frank died in 2015, Charlotte Hawkins, the host of Good Morning Britain, has been a patron of the Motor Neuron Disease Association. She is supporting the Sunday Express’ battle for £50 million in five-year government funding for a “game-changing” MND Research Institute.
One of the most difficult aspects of my father’s diagnosis of motor neuron disease was the realization that there was no way to save him. There is no cure and no effective treatment available. It’s a death sentence, and there was nothing we could do about it.
I was astounded that there was nothing available to aid in this day and age. There was no hope, and there was only one way to go. That feels so far away in the twenty-first century.
Science is amazing; it has provided us with so many discoveries, medications, and therapies to heal illnesses, prevent them, disguise symptoms, and improve people’s quality of life. But there isn’t anything for MND.
Every day, like tens of thousands of other people, I had to watch my father’s sickness grow, robbing him of his ability to walk, move, talk, and, eventually, breathe, after three years.
It was horrifying when his body gave up on him. It inspired me to do everything I can to keep other families from having to go through what we did.
Six years later, progress has been made; there is greater awareness, knowledge, and science. However, the sad reality is that no effective remedies exist.
Today’s six MND patients will not be walking out of the clinic with a prescription that will make their path easier. Within a year, a third of them will die, and half will die within two years.
Everyone has had a difficult year and a half, but especially the most vulnerable.
But if the pandemic has taught us anything, it’s that if you have the drive and the money, you can achieve tremendous scientific breakthroughs.
In the shortest time ever, the Covid vaccination was researched, developed, tested, and delivered to people’s arms. It gave me hope that we might be able to achieve something similar with disorders like MND.
The good news is that MND research has reached a critical juncture, and we are on the verge of reaching a breakthrough. “Brinkwire News in Condensed Form.”