I’m always afraid of a chunk of my brain being sliced off and bursting out of my head.
A STUDENT is terrified of being decapitated inside after an ice-skating accident revealed a variety of concerning health issues.
Emily Balfour claims that her life has become a living hell because a portion of her brain is on the verge of bursting out of her skull.
The 23-year-old has had to halt her university studies in English literature in order to fund £150,000 for private surgery in the United States to stabilize her skeleton, as she claims the ‘glue’ that holds her body together is dangerously weak.
Emily, who lives in Muswell Hill, north London, claims she suffers from chronic muscle pain, exhaustion, and joint dislocations.
“My problem has worsened to the point where I wouldn’t be able to function without pain relief,” she explained. It’s excruciating pain that’s absolutely unexplainable when it’s at its worst.
“This operation will completely transform my life.” I just want to be normal again and not be in such a horrible situation. My body is held together by a very weak adhesive.
“I have a Chiari malformation, which means that parts of my brain is not in my skull because the lower part of my brain is herniating and pressing down through the base of my spinal column.”
Emily was diagnosed with hypermobile Ehlers Danlos syndrome (EDS) in 2011, when she was 14 years old. EDS is a collection of uncommon genetic disorders that affect connective tissues and, in Emily’s case, causes her joints to be especially fluid, unstable, and prone to dislocation.
Doctors discovered Emily had craniocervical instability (CCI) after the ice skating accident, which means the area where her skull and spine meet is dangerously unstable.
She also has Eagle syndrome, which causes pain in the face and neck due to abnormalities with the styloid process, a little pointy bone immediately below the ear.
She has jugular vein compression, or increased pressure on the veins in the neck, in addition to Chiari malformation.
Due to visual processing issues, Emily is no longer able to enjoy simple pleasures like as reading a book.
She postponed her studies until early 2020, believing that surgery will help her reclaim some normalcy in her life, and that as a youngster, she believed it was normal to be in pain.
Looking back on her life, she admitted that she had early indicators of health issues, but she continued to participate in a variety of activities and tried not to let them worry her.
“It’s always been there to some degree,” she explained, “but I lived a fairly normal life and was very busy.”
“I’ve always had sleeplessness and recently developed ocular migraines, a disorder that causes temporary blindness or flashing lights in one eye… Brinkwire News in a Nutshell