Before her death from Alzheimer’s disease, actress Barbara Windsor publicly advocated for a dementia charity, though Sean Connery’s wife did not announce that he had the condition until November after his death.
The family of Celtic legend Billy McNeill decided to postpone disclosing his diagnosis, while the public announcement by author Terry Pratchet that he had an early-onset form of dementia was characterized as a “turning point” for the profile of the disease some eight years before his death.
For charities, which depend primarily on public donations, celebrity funding can be lucrative. The Alzheimer’s Society said the participation of Barbara Windsor contributed to its most active London Marathon fundraising effort.
Nevertheless, Professor June Andrews, a leading dementia expert, says that people in the public eye do not feel obligated to disclose what a “intensely private grief.” may be.
The death in February 2009 of reality TV contestant Jade Goody led to a spike in cervical cancer screening after she made her diagnosis public six months earlier.
However, Prof. Andrews points out that for disorders such as dementia, for which there is currently no screening method, there is no equivalent or observable advantage.
The Scottish government is being encouraged to remove “unfair” cost-sharing systems in care homes for dementia patients.
“She said, “First, you need a better reason than raising awareness if you’re going to ask celebrities to talk about some disease, unless the disease is really rare.
Dementia is popular and there is already a high degree of understanding.
“Look how often it’s on the front pages of the news. It’s a lot to ask of someone without them benefiting from it. “To want to see someone who was once strong and significant when they fade away is like voyeurism, where people are fascinated by others’ pain and suffering.
It’s “infotainment,” masquerading as information, or entertainment.
Second, the more dementia advances, the more vulnerable the person becomes and the more they die. How can we decide when enough is appropriate if the person can no longer decide for himself?
“Fourth, there’s a strong difference with someone like Jade Goody, who used her popularity to inspire other women to get scans while she was still able to make decisions so they wouldn’t die of cancer like she did.
“There is no equivalent in dementia.”
“The person who is the “If they advocate euthanasia, the person who is the ” for Alzheimer’s will be dropped like a hot rock if they advocate euthanasia.” for Alzheimer’s will be dropped like a hot rock.
Barbara Windsor and husband Scott not only raised a lot of money through their involvement with the organisation, but also helped demonstrate the “dire” state of social care, said Kate Lee, Alzheimer’s Society’s executive director.
Learn MORE: According to a recent report, the top three avoidable risk factors for dementia.
Lynsey Neilson is project manager at Glasgow’s Golden Generation, which runs day centers for elderly people across the region, many of whom have dementia, helping them to live as long as possible independently.
She asked for her opinion of Dorothy McFadyen, who has dementia, and said she thinks that celebrities should be more transparent about their condition because, “It’s nothing to be ashamed of, and it’s nothing to ask for.”
Ms. Neilson said that celebrities do not feel compelled to make their illness public, but she believes that it might inspire others at an earlier stage to seek treatment for the illness.
Ms. Neilson said, “It’s great to see dementia being talked about more openly in the press because it takes a lot of the fear and stigma away from the disease, which is so important,”
The more people talk about it, the more likely people are to seek assistance.
Pressure on care facilities accounted for a 75% rise in women dying at home with dementia.
A number of celebrities have spoken more about their illness in the media, and I believe that can be very helpful in raising awareness of dementia and its effects.
Everyone deals differently with the disease, and no one should ever feel like they need to make their dementia public,